Research Design - Data Collection and Management

Research Design - Data Collection and Management
Methodological and practical guidance for designing and conducting online qualitative surveys in public health
Health Promotion International, Volume 39, Issue 3, June 2024
Presented by Samantha L Thomas, Hannah Pitt, Simone McCarthy, Grace Arnot, Marita Hennessy
Description

Online qualitative surveys—those surveys that prioritise qualitative questions and interpretivist values—have rich potential for researchers, particularly in new or emerging areas of public health. However, there is limited discussion about the practical development and methodological implications of such surveys, particularly for public health researchers. This poses challenges for researchers, funders, ethics committees, and peer reviewers in assessing the rigour and robustness of such research, and in deciding the appropriateness of the method for answering different research questions. Drawing and extending on the work of other researchers, as well as our own experiences of conducting online qualitative surveys with young people and adults, we describe the processes associated with developing and implementing online qualitative surveys and writing up online qualitative survey data. We provide practical examples and lessons learned about question development, the importance of rigorous piloting strategies, use of novel techniques to prompt detailed responses from participants, and decisions that are made about data preparation and interpretation. We consider reviewer comments, and some ethical considerations of this type of qualitative research for both participants and researchers. We provide a range of practical strategies to improve trustworthiness in decision-making and data interpretation—including the importance of using theory. Rigorous online qualitative surveys that are grounded in qualitative interpretivist values offer a range of unique benefits for public health researchers, knowledge users, and research participants.

Source / Format
  • Journal Article
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Research Design - Data Collection and Management
All the research data things
Australian Research Data Commons
Description

23 (research data) things is self-directed learning for anybody who wants to know more about research data.

Source / Format
  • Reading, links to extensive range of resources
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Research Design - Data Collection and Management
Good Data Practices
Australian Research Data Commons
Description

Good data practices mean researchers and institutions can meet obligations to funders, improve the efficiency of research, and ensure data is findable, accessible, interoperable, and reusable (FAIR). Doing data right is a joint responsibility between researchers and institutions. The ARDC has collated the following best-practice guidance to help you manage your research data in the most effective way possible.

Source / Format
  • Reading, links to further reading
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Research Design - Data Collection and Management
Research Data Management
Curtin University
Description

An introduction to research data, including types of data, data ownership, data management planning, documentation, storage, access and security.

Source / Format
  • Videos, varying durations, reading
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Research Design - Data Collection and Management
Data Collection and Management
Child and Adolescent Health Service Research Education Program
Presented by Dr Jane Mugure Githae
Description

This seminar explains why we need good data management practices, outlines researcher responsibilities, and provides practical data management planning strategies, including database design and development, data entry, cleaning and storage to ensure the most robust and safe data possible.

Source / Format
  • Recorded webinar, 55 mins duration, slides handout. The link goes to the Research Education page. Click on "Seminars" (R-hand side of the page), then scroll to the "Library of Seminar Recordings", then click on "Data Collection and Management". Complete the short RedCap survey, submit it, then choose the recording and/or slides handout.
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Research Design - Data Collection and Management
Data Collection: Definition, Methods & Examples
Scribbr
Description

Comprehensive introduction to data collection for quanititative and qualitative approaches, includes step by step instructions, examples and templates.

Source / Format
  • Reading, videos 5 mins duration, examples and templates
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Research Design - Data Collection and Management
Data Governance and Data Quality
Australian Research Data Commons
Description

In this presentation, the ARDC’s Dr Robin Burgess highlights the importance of having a governance framework in place. It supports the management, handling and sharing of the data created by a project. It also ensures that any data that has been created is of good quality, supporting sharing and future reuse of the data.

Source / Format
  • Video, 15 mins duration
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Research Design - Data Collection and Management
Data Management Plans
Australian Research Data Commons
Description

A data management plan (DMP) is a living document for a research project, which outlines data creation, data policies, access and ownership rules, management practices, management facilities and equipment, and who will be responsible for what.

Source / Format
  • Reading, links to further reading
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Research Design - Data Collection and Management
Creating a Data Management Plan
Curtin University
Description

This video outlines how to create a Data Management Plan.

Source / Format
  • Recorded Webinar, 25 mins duration
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Research Design - Data Collection and Management
Data Sharing Agreement Development Guidelines
Australian Research Data Commons
Description

A guide to developing a data sharing agreement (DSA), which brings clarity to what can and cannot be done with the data you are sharing as the owner or accessing as the requester.

Source / Format
  • Recorded Webinar, 55 mins duration, reading
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Research Design - Data Collection and Management
Microsoft Excel Essentials
Curtin University
Description

This module covers some of the key features of Microsoft Excel through the simple example of using an Excel workbook to plan for a party. The idea is that you can then apply these same concepts to any workbooks of your own, including much larger ones. Where possible, the instructions provided are general so they can apply to whatever version of the software you have; however these instructions and screenshots specifically apply to Excel 2016 on a Windows 10 operating system. If you find that the instructions differ from your version of Excel, you can use the Help box in Excel to search for the option you need. For detailed instructions on any of the topics covered (or anything else not covered), remember Google is your friend and other guides can usually be found online.

Source / Format
  • Reading, exercises as examples, templates available
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Research Design - Data Collection and Management
Data Toolkit
Data.govt.nz
Description

The data toolkit covers topics including; Introduction to data, Data Ethics, Data Governance, Data Management, Data Standards, Data Stewardship, Data Storage, Open Data, Policy, Privacy, security and confidentiality, Data capability.

Source / Format
  • Reading, examples, templates
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Research Design - Data Collection and Management
Introduction to text mining and analysis
Digital Research Skills Australasia (DReSA)
Description

In this self-paced workshop you will learn steps to build data sets: find where and how to gather textual data for your corpus or data set, Prepare data for analysis: explore useful processes and tools to prepare and clean textual data for analysis, analyse data: identify different types of analysis used to interrogate content and uncover new insights.

Source / Format
  • Online self paced workshop
  • There are 182 workshops on DReSA website relating to digital data
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Research Design - Data Collection and Management
Collecting and Interpreting Data
INCEPT, a partnership between the INW PCP Prevention Alliance and the University of Melbourne
Description

Key data collection and analysis guidance, with templates in development.

Source / Format
  • Reading, templates
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Research Design - Data Collection and Management
How to write a survey questionnaire for evaluation: A guide for beginners
Australian Institute of Family Studies
Description

The resource provides basic information and practical tips to help you design and implement simple survey questionnaires for your program evaluation activities. These resources are intended for people who are considering writing a survey questionnaire to collect data for program evaluation but have limited experience or training in writing survey questions.

Source / Format
  • Reading, examples
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Research Design - Data Collection and Management
Using a survey to collect data for evaluation: A guide for beginners
Australian Institute of Family Studies
Description

This practice guide is for people who are considering using a survey method to collect data for program evaluation but have limited experience or training in using surveys. The resource provides general guidance about using surveys as well as tips on when and how you might use a survey and what steps are involved in conducting surveys. The resource also briefly outlines the different methods of data collection that can be used to evaluate a program.

Source / Format
  • Reading, examples
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Research Design - Data Collection and Management
How to tame the “Survey Beast”, Empowerment Evaluation Toolkit
Ohio Domestic Violence Network
Description

Surveys are commonly used as a way to gather the information. Finding the resources to process and analyse all that data can feel overwhelming and sometimes you may not be sure where to begin. These tips are designed to reduce the burden of managing surveys and to make the most of the data you collect.

Source / Format
  • PDF reading
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Research Design - Data Collection and Management
Questionnaire Design
Tropical Australian Academic Health Centre
Presented by Dr Michael Crowe
Description

What do you need to think about when developing a questionnaire? This workshop looks at the information being sought, understanding respondents, wording of questions and responses, question sequence, and revising the questionnaire.

Source / Format
  • Recorded Webinar, 60 mins duration
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Research Design - Data Collection and Management
Survey Design and Techniques
Child and Adolescent Health Service Research Education Program
Presented by Dr Jane Mugure Githae
Description

Practical help for planning and conducting surveys, includes good survey design, approval pathways, sampling and admin mehtods, writing high quality questionnaires and data collection instruments, maximising response rates and reducing data errors.

Source / Format
  • Recorded Webinar, 55 mins duration, slides handout. The link goes to the Research Education page. Click on "Seminars" (R-hand side of the page), then scroll to the "Library of Seminar Recordings", then click on "Survey Design and Techniques". Complete the short RedCap survey, submit it, then choose the recording and/or slides handout.
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Research Design - Data Collection and Management
Using REDCap for Data Capture and Management
Child and Adolescent Health Service Research Education Program
Presented by Dr Jane Mugure Githae
Description

This presentation covers how to access REDCap, basic REDCap functionality, and where to go for further assistance and resources.

Source / Format
  • Recorded Webinar, 60 mins duration, slides handout. The link goes to the Research Education page. Click on "Seminars" (R-hand side of the page), then scroll to the "Library of Seminar Recordings", then click on "REDCap for Data Capture and Management". Complete the short RedCap survey, submit it, then choose the recording and/or slides handout.
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Research Design - Data Collection and Management
SurveyMonkey: Create and publish online surveys in minutes; a complete tutorial for beginners
SurveyMonkey
Description

This video is a beginners guide to designing online surveys in SurveyMonkey.

Source / Format
  • Video, 35 mins duration
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Research Design - Data Collection and Management
Introduction to Qualtrics
Curtin University
Description

This module provides an introduction to creating and distributing a survey using the online tool Qualtrics.

Source / Format
  • Reading, examples
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Research Design - Data Collection and Management
Introduction to Covidence
The George Washington University
Description

Learn how to use Covidence, an online tool that streamlines parts of the systematic review process. These videos go through what is Covidence, getting started, importing references, screening, data extraction, quality assessment and PRISMA.

Source / Format
  • Short videos, 30 secs-3 mins durations, reading
  • Nil for introduction, NB Covidence use includes costs for the user
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Research Design - Data Collection and Management
Introduction to Endnote
University of Newcastle
Description

This introduction to Endnote video covers: What is Endnote, Endnote 20, Setting up an Endnote library, Adding references, Endote and Word and how to get help.

Source / Format
  • Video, 50 mins duration
  • Nil for introduction, NB Endnote use includes costs for the user. Check with your organisation or library for existing accounts
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Research Design - Data Collection and Management
Endnote 20: Getting Started
University of Newcastle Library Guides
Description

Learn how to : Get started with Endnote, downloading and installing, adding records, managing records, backing up your Endnote library, Endnote online, Endnote and Word, FAQs.

Source / Format
  • Reading, links to further reading and videos, 3-60 mins durations
  • Nil for introduction, NB Endnote use includes costs for the user. Check with your organisation or library for existing accounts
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Research Design - Data Collection and Management
How to extract, analyse and present data in scoping reviews
Joanna Briggs Institute (JBI)
Presented by Dr Danielle Pollock
Description

This presentation provides a practical approach to extracting, analysing, and presenting data within scoping reviews, with step-by-step examples.

Source / Format
  • Recorded Webinar, 1 hour 30 mins duration
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Research Design - Data Collection and Management
Patient Reported Outcome Measure Translations and Cross-Cultural Validations
UTS University, Centre for Health Economics Research and Evaluation (CHERE)
Description

List of translations and cultural validations for patient-reported outcomes measures (PROMs) that are currently used in cancer clinical trials.

Source / Format
  • Reading, links to tool translations
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Research Design - Data Collection and Management
Reducing Research Waste in (Health-Related) Quality of Life Research
UTS University, Centre for Health Economics Research and Evaluation (CHERE)
Description

Describes potential solutions to reduce research waste while maximising patient-related outcome (PRO) data. Considers research waste in research design and conduct; publication and reporting; usability of results.

Source / Format
  • Reading, links to articles
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Research Design - Data Collection and Management
The EORTC QLQ and FACIT Measurement Suites Compared
UTS University, Centre for Health Economics Research and Evaluation (CHERE)
Description

The EORTC QLQ and FACIT measurement suites provide the most widely used cancer-specific questionnaires for patient reported outcomes (PROs) in clinical research. This site provides a summary comparison of each measurement suite.

Source / Format
  • PDF reading
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Research Design - Data Collection and Management
Quality of Life Tools
UTS University, Centre for Health Economics Research and Evaluation (CHERE)
Description

Three links to Quality of Life – Technical Service (QOL-TS) checklist; Participant Fact Sheet: Understanding Quality of Life Assessments in Cancer Research; Administering Quality of Life Questionnaires in Cancer Trials (For Trial Staff).

Source / Format
  • Links to reading and documents
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Research Design - Data Collection and Management
Health Economics in Health Services Research
UTS Cancer Research Economics Support Team (CREST)
Description

A range of resources to assist in incorporating health economic and pharmacoeconomic analyses into trial protocols and research. Provides factsheets, checklists, and excel workbook on collecting administrative data. Access also provided to 3 videos on undertanding health economics in cancer research, and a consumers’ guide.

Source / Format
  • Links to reading and documents
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Research Design - Data Collection and Management
Health Studies Australian National Data Asset (HeSANDA)
Australian Research Data Commons
Description

Learn about the Health Studies Australian National Data Asset (HeSANDA) program and how it is building national infrastructure to allow researchers to access and share data from health studies, including clinical trials, cohort studies and other data valuable for research.

Source / Format
  • Reading, link to data search tool
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Research Design - Data Collection and Management
Victorian Cancer Registry
Cancer Council Victoria
Description

The Victorian Cancer Registry (VCR) Data Explorer can be accessed on the Cancer Council Victoria website. You are able to download statistics about cancer incidence in Victoria, including per tumour stream, and under the headings of diagnoses, deaths, and survival. For more detailed data, you can request aggregated (non-identifiable) data via the data request form. There are also provisions for identifiable data and accessing your own cancer data. Future developments plan to provide data by geographical prevalence and more detailed data for haematological cancers. There is a cost for accessing data, see the webpage for details.

Source / Format
  • Online information with potential to request further data
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Research Design - Data Collection and Management
The Evaluation of Cancer Outcomes Barwon South West (ECOBSW)
Barwon South West Regional Cancer Services (BSWRICS)
Description

For the Barwon South West of Victoria only. The registry was developed to capture outcomes, patterns of care and quality of care delivered to patients diagnosed with cancer in the Barwon South Western region. Data includes stage at diagnosis, first-line treatments, and subsequent outcomes. The dataset provides comprehensive information to inform clinical and population health decision-making for all residents of the region.

Source / Format
  • For BSW only, request for data form
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